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A Face for Picasso: Author Talk with Ariel Henley

April 6 @ 4:00 pm - 5:00 pm

I am ugly. There’s a mathematical equation to prove it.

At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome — a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.
Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.

Ariel explores beauty and identity in her Schneider Family Book Award for “excellence of portrayal of the disability experience in literature for youth” honor memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.

This event will feature automatic closed captioning in English.


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